Inpatient since Wed night 3am
Friday, June 25, 2010
Hi all,
Charmaine complained of eye pain on her left eye corner on tuesday night. My heart probably sank all the way down and I felt like I could barely breathe properly. Just one word of pain from
Charmaine will send me hyperventilating and grasping for air every single time. And with each additional time you hear it, the more paranoid you get...
So anyway, wednesday morning came and she said she could feel the pain but she can control it. I emailed Dr Aung and she called me in the afternoon. Said to observe and call her if it gets any worse. By abt 4pm, her left eye doesn't hurt but her right eye does!
I freaked. I wasn't going to take this travelling pain slightly. I called back KKH operator but she said she couldn't reach Dr Aung. I decided to go down anyway. Will not have any peace of mind if I didn't.
Dr Aung checked her and said she suspected it might be allergy or some dust. Got some naturale tears, went home. Within reaching home an hour, I felt her forehead burning. Told Charmaine to check her temp. She checked and saw 38. Burst out crying loudly that she didn't want to go hospital. Sigh... I know it would upset her greatly. We just got back on sat afternoon and she barely recovered from her chemo. I told her to sleep it off and strangely, the temp dropped immediately.
I checked her hourly and temp started to climb about 9pm. I prepared her for admission. She was still very lethargic and tired. I didn't feel good. She said to rest a little bit more and she would go. But it was evident that she couldn't even rest comfortably. Finally she agreed that it was time to go. We reached KKH abt 1am.
It was almost a rare sight to see such a quiet A&E but I'm glad. It meant that kids are at home sleeping, where they should be.
Fever dropped below 38 once we started first dose of iv fortum but it refused to touch base! It was hovering abt 37.5 to 37.8 and it sucked! So here we are, with zero immunity... Unexpected as this chemo shouldn't drop her counts. But not surprised as she is defin having some sort of infection that her body is fighting...
We are still waiting for her blood test results to come back. Please pray for boring results - negative! and that her temp will finally touch base of 36.9! The rounding doc this week is someone that is trained to keep a patient in for 5 days of antibiotics even when the blood cultures are negative, so it looks like we will be discharged earliest Monday. That will give us abt 4 days to prepare for her birthday and than we will readmit again on Monday 5th July for chemo.
Just a few days ago, I was looking to resting at home as I'm rather ill myself... But in we come again! Oh well, it's still rest nonetheless! I'm just so stressed abt my throat! Loading myself with antibiotics and mask 24/7!
Please pray that this fever goes off completely and that Charmaine will be chatty and feisty again! Thank you so much for checking in on us.
May the bug/virus steer clear of us all!
Love,
cyn mommy
Charmaine complained of eye pain on her left eye corner on tuesday night. My heart probably sank all the way down and I felt like I could barely breathe properly. Just one word of pain from
Charmaine will send me hyperventilating and grasping for air every single time. And with each additional time you hear it, the more paranoid you get...
So anyway, wednesday morning came and she said she could feel the pain but she can control it. I emailed Dr Aung and she called me in the afternoon. Said to observe and call her if it gets any worse. By abt 4pm, her left eye doesn't hurt but her right eye does!
I freaked. I wasn't going to take this travelling pain slightly. I called back KKH operator but she said she couldn't reach Dr Aung. I decided to go down anyway. Will not have any peace of mind if I didn't.
Dr Aung checked her and said she suspected it might be allergy or some dust. Got some naturale tears, went home. Within reaching home an hour, I felt her forehead burning. Told Charmaine to check her temp. She checked and saw 38. Burst out crying loudly that she didn't want to go hospital. Sigh... I know it would upset her greatly. We just got back on sat afternoon and she barely recovered from her chemo. I told her to sleep it off and strangely, the temp dropped immediately.
I checked her hourly and temp started to climb about 9pm. I prepared her for admission. She was still very lethargic and tired. I didn't feel good. She said to rest a little bit more and she would go. But it was evident that she couldn't even rest comfortably. Finally she agreed that it was time to go. We reached KKH abt 1am.
It was almost a rare sight to see such a quiet A&E but I'm glad. It meant that kids are at home sleeping, where they should be.
Fever dropped below 38 once we started first dose of iv fortum but it refused to touch base! It was hovering abt 37.5 to 37.8 and it sucked! So here we are, with zero immunity... Unexpected as this chemo shouldn't drop her counts. But not surprised as she is defin having some sort of infection that her body is fighting...
We are still waiting for her blood test results to come back. Please pray for boring results - negative! and that her temp will finally touch base of 36.9! The rounding doc this week is someone that is trained to keep a patient in for 5 days of antibiotics even when the blood cultures are negative, so it looks like we will be discharged earliest Monday. That will give us abt 4 days to prepare for her birthday and than we will readmit again on Monday 5th July for chemo.
Just a few days ago, I was looking to resting at home as I'm rather ill myself... But in we come again! Oh well, it's still rest nonetheless! I'm just so stressed abt my throat! Loading myself with antibiotics and mask 24/7!
Please pray that this fever goes off completely and that Charmaine will be chatty and feisty again! Thank you so much for checking in on us.
May the bug/virus steer clear of us all!
Love,
cyn mommy
Cycle #6 (Cycle #11) Completed and home again!
Monday, June 21, 2010
Just a really quick entry here!
We have completed our chemo on saturday and was discharged.
Home now to enjoy our time away from hospital.
July is a special month for us. Its Charmaine's birthday month. She will be turning 5 soon and I cant be any happier. (We are secretly counting down the days to July!)
The plan now is to stay fever free, infection free and basically just HEALTHY all the way! Did I mention all the way until she celebrates her 100th birthday? Oh well, guess I cant be that greedy! :-)
Our next chemo is due just after her birthday celebration on 5th July.
And we will be repeating all the scans and bone marrow biopsies in the week of 19th July. SCANXIETY but I am NOT thinking about them for now. The scan results will tell us our next course of plans and most slightly, if all goes well, we are set to head back for more treatment in NYC very soon. I am not the most enthusiatic as usual (leaving family and close friends behind) but heading back also means we are heading towards the right direction - the path to recovery.
Will update soon again but my computer has totally died on me this time so updates may not be as frequent until I figure out how to fix it... This July is like last year! Crazy busy with all the travel arrangements and scanxiety and something extra this year - Primary One Registration. Oh gosh, is the registration supposed to be fun? Frankly to me, I thought HOW TOUGH can it be compared to waiting for scan results. So cyn mommy, chill！We will sort that out eventually, the only issue is whether school is just next door or a few junctions away! Either way, he will get a school. I guess my only indulgence is hopefully we will get a compassionate school that will understand our family situation. So when its Charmaine's turn to start Primary One, she will have hopefully less trouble adapting.
Alright, I have to get going. Still tons to be done! May everyone be blessed with a great week ahead. Happiness begins from within us! :-) (Its difficult I know, I am still learning the art too!)
OH OH OH! Did I mention that July/Aug was also the time she NED last year! The best birthday gift for us would be to hear her NED results from her scans! Please continue to keep those prayers coming in! THANK YOU ALL.
Love,
Cyn mommy
We have completed our chemo on saturday and was discharged.
Home now to enjoy our time away from hospital.
July is a special month for us. Its Charmaine's birthday month. She will be turning 5 soon and I cant be any happier. (We are secretly counting down the days to July!)
The plan now is to stay fever free, infection free and basically just HEALTHY all the way! Did I mention all the way until she celebrates her 100th birthday? Oh well, guess I cant be that greedy! :-)
Our next chemo is due just after her birthday celebration on 5th July.
And we will be repeating all the scans and bone marrow biopsies in the week of 19th July. SCANXIETY but I am NOT thinking about them for now. The scan results will tell us our next course of plans and most slightly, if all goes well, we are set to head back for more treatment in NYC very soon. I am not the most enthusiatic as usual (leaving family and close friends behind) but heading back also means we are heading towards the right direction - the path to recovery.
Will update soon again but my computer has totally died on me this time so updates may not be as frequent until I figure out how to fix it... This July is like last year! Crazy busy with all the travel arrangements and scanxiety and something extra this year - Primary One Registration. Oh gosh, is the registration supposed to be fun? Frankly to me, I thought HOW TOUGH can it be compared to waiting for scan results. So cyn mommy, chill！We will sort that out eventually, the only issue is whether school is just next door or a few junctions away! Either way, he will get a school. I guess my only indulgence is hopefully we will get a compassionate school that will understand our family situation. So when its Charmaine's turn to start Primary One, she will have hopefully less trouble adapting.
Alright, I have to get going. Still tons to be done! May everyone be blessed with a great week ahead. Happiness begins from within us! :-) (Its difficult I know, I am still learning the art too!)
OH OH OH! Did I mention that July/Aug was also the time she NED last year! The best birthday gift for us would be to hear her NED results from her scans! Please continue to keep those prayers coming in! THANK YOU ALL.
Love,
Cyn mommy
Relief! Chemo starting today
Tuesday, June 15, 2010
Hello from Ward 76,
We are in the playroom now, Charmaine is watching some videos on Youtube while I am on another computer updating as we wait for her chemo drugs to arrive.
Her pain has reduced considerably. She was able to sleep through the night! I asked if she felt any pain last night. She said yes but it was very little and hence she could control it.
The swelling on her knee has also visibly gone down, THANKFULLY.
So our doctors cleared us and we are ready to go for the next chemo. Cycle #11! Praying that the chemo will do its work and KILL all the cancer cells, if any, still lurking in her body. Otherwise, let her be already completely healed on our mother earth! :-)
Surprise, Jase just dropped us a surprise visit with Gong Gong and breakfast! So yeah, gotta go give my big boy a hug!
Love you all,
Cyn mommy
We are in the playroom now, Charmaine is watching some videos on Youtube while I am on another computer updating as we wait for her chemo drugs to arrive.
Her pain has reduced considerably. She was able to sleep through the night! I asked if she felt any pain last night. She said yes but it was very little and hence she could control it.
The swelling on her knee has also visibly gone down, THANKFULLY.
So our doctors cleared us and we are ready to go for the next chemo. Cycle #11! Praying that the chemo will do its work and KILL all the cancer cells, if any, still lurking in her body. Otherwise, let her be already completely healed on our mother earth! :-)
Surprise, Jase just dropped us a surprise visit with Gong Gong and breakfast! So yeah, gotta go give my big boy a hug!
Love you all,
Cyn mommy
We need prayers... Swollen knee and pain...
Monday, June 14, 2010
I don't know how to start this entry...
We had a really great time over the weekend playing with all their favourite jie jie and kor kor; everyone came!
But charmaine started with a slight limp on Friday and progressed to a full blown swell and pain...
Admitted yesterday night... Her pain always gets much worse in the middle of the night. Both sat and sun nights were bad, especially Sunday. She literally sobbed for more than 3hrs...
But she is doing better now... Chemo is delayed as a result.
The ultrasound scan turned up nothing. The doctors suspect that it could be due to a fall last Monday when she was playing with Jase. The trauma or injury probably gotten worse as she has not stopped moving since discharge. Dr Aung jokes that Charmaine doesn't do normal activities but high energy level ones. Yeah, she cycles everyday and even with a limp, she wouldn't admit the pain to me. I asked every 5 min because I was so paranoid and concerned but she kept denying the whole friday and Saturday. Only at evening of sat, when we completed all our activities did she suddenly asked to be carried as her knee was painful. And it was only than she confessed that she was actually having a little bit of pain since Friday.
This is Charmaine. I don't know if it's a blessing or what but she sure has an amazing tolerance for pain. Her threshold is so unbelievable that she wouldn't cringe until it gets seriously bad.
And that's why I suspect that the reason why her pain always seems to get so much worse or unbearable in the middle of the night... Because her subconscious is too tired and she has forgotten to tolerate the pain...
Now, no treatment... We are just waiting to see how it goes tomorrow. She says she can feel a slight pain but she is definitely not complaining at all! Hence, unless you ask, you would never know if she is in pain.
Please continue to keep charmaine in your prayers. Dear god, please let this be an injury from a simple fall and that she is already recovering. Please let her have a restful sleep tonight with no pain but sweet dreams.
I just want to end by saying that Charmaine has grown to become my 17.4kg bundle of joy!!! It's the first time she crossed 17kg!!!
Hoping that everyone is doing good. Take care.
Love,
cyn mommy
We had a really great time over the weekend playing with all their favourite jie jie and kor kor; everyone came!
But charmaine started with a slight limp on Friday and progressed to a full blown swell and pain...
Admitted yesterday night... Her pain always gets much worse in the middle of the night. Both sat and sun nights were bad, especially Sunday. She literally sobbed for more than 3hrs...
But she is doing better now... Chemo is delayed as a result.
The ultrasound scan turned up nothing. The doctors suspect that it could be due to a fall last Monday when she was playing with Jase. The trauma or injury probably gotten worse as she has not stopped moving since discharge. Dr Aung jokes that Charmaine doesn't do normal activities but high energy level ones. Yeah, she cycles everyday and even with a limp, she wouldn't admit the pain to me. I asked every 5 min because I was so paranoid and concerned but she kept denying the whole friday and Saturday. Only at evening of sat, when we completed all our activities did she suddenly asked to be carried as her knee was painful. And it was only than she confessed that she was actually having a little bit of pain since Friday.
This is Charmaine. I don't know if it's a blessing or what but she sure has an amazing tolerance for pain. Her threshold is so unbelievable that she wouldn't cringe until it gets seriously bad.
And that's why I suspect that the reason why her pain always seems to get so much worse or unbearable in the middle of the night... Because her subconscious is too tired and she has forgotten to tolerate the pain...
Now, no treatment... We are just waiting to see how it goes tomorrow. She says she can feel a slight pain but she is definitely not complaining at all! Hence, unless you ask, you would never know if she is in pain.
Please continue to keep charmaine in your prayers. Dear god, please let this be an injury from a simple fall and that she is already recovering. Please let her have a restful sleep tonight with no pain but sweet dreams.
I just want to end by saying that Charmaine has grown to become my 17.4kg bundle of joy!!! It's the first time she crossed 17kg!!!
Hoping that everyone is doing good. Take care.
Love,
cyn mommy
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