We were discharged last night!

Wednesday, February 17, 2010

Hello everyone,

Yes, Dr Aung discharged us last night after her fever has subsided and a platelet transfusion.

It's awesome to be home! Char's knee still look slightly swollen but doc feels comfortable to switch us to oral antibiotics. Of course, I'm warned of the possible horrible side effects. As a mom, one can never be numbed by those words no matter how many times you hear it. It makes you hesitate, makes you worried BUT what other options do I have other than to feed her myself?

Dr Aung said that she has not seen a kid reacted with such low counts and transfusions with this chemo. Indeed, everything went off the norm and all the unexpected happen but I'm grateful, very thankful that we survived and is now home.

On top of all the unexpected, char seemed to have gotten some bad reaction from the port site dye to the plaster they use. Surprisingly, we have used those tagederm plasters before and never had any issues with it. Her skin is red, burned and just painful to look at! And because of that, I refused to allow them to immediately access her port and as a a result, a plug was set on her left hand. She was traumatised and kept crying non stop. We are scheduled to have a radiation simulation tmr and hence opted to leave the plug in.

Always being in a situation deciding what pain to inflict on my own daughter is exceedingly unpleasant but I keep telling myself having options is wonderful compared to none; so complain not. Frankly the plug could have been totally avoided! (Not getting personal but cant help feeling upset)

Radiation is scheduled to start next week. I need all the prayers for everything to proceed smoothly and for her knee infection to totally heal soon!

At the back of my mind, I am still very concerned looking at Char's port site and is wondering how to convince them to use a different plaster so that such incidents do not arise. (I do not think its a plaster allergy because she has used tagederm countless times and never had an incident like this one! She was previously admitted to KK and used the same plasters too!) But yet, I dont want to risk her site getting another reaction like this! If you ask me, based on my limited knowledge, Dr Chui once taught me, when sticking the plasters, pressure shouldn't be applied, ie. stretched, because it would cause the area around the wound to become inflamed/infected (?) I cant remember the exact words but something to that extent which suddenly popped into my mind when I saw how bad Char's site was! I dont want to end this with a 'sigh' but yes I have to think fast before we re-admit again!

Thank you everyone for following us closely and always extending a helping hand. Thank you for all your precious prayers too. THANK YOU ALL.

Its still CNY! Do treasure the moment. Happy first day at work for the rest of my friends! (Trust me, its good to be able to work, no matter how much work sucks) :-)

With love and hope,
Cyn mommy

9 comments:

Louise said...

I am truly amazed at your strength. I am a Mom too and it is very hard to watch our children in pain - my two sons are young men now and it is still hard to see them in pain. My prayers are with you and your family. Charmaine is remarkably strong, like her mom. Louise

J.H said...

I hope your little princess feeling much better and be able to spend this festive season.
Can't wait to see some picture of her smiling again :-)

J said...

hi dear, is the fundraising still going on?

2am said...

To be able to discharge from hospital is good news! I hope the pain will reduce at char port site, maybe you should just ring dr chui and ask him to take a look. Any form of pain relieved on char helps, at least all her energy can concentrate on fighting the monster. Wising all is well for you, char n Jase. God bless... Hope the year of tiger brings luck, energy, better better healthy n happiness to char, Jase, you n your family n Friends!

2am said...

To be able to discharge from hospital is good news! I hope the pain will reduce at char port site, maybe you should just ring dr chui and ask him to take a look. Any form of pain relieved on char helps, at least all her energy can concentrate on fighting the monster. Wising all is well for you, char n Jase. God bless... Hope the year of tiger brings luck, energy, better better healthy n happiness to char, Jase, you n your family n Friends!

Mama Joan said...

Happy Chinese New Year Cyn n Char n Jase! May this year be a year where you all will witness God's healing power on Charmaine and many blessings to be poured from the window of heavens onto your family! Enjoy your family time together! Cheers!

mamachang said...

Glad to hear the little princess charmaine is home again, may this new year bring renewed hope n health improvement with little sweet char wholly feeling n getting better, big hugs n kisses for the brave girls, yes mommy cyn included, you have done extremely well n may we pray that your dreams n hopes be wish fulfilling with the tenacity n ferociousness of the tiger. With buckets of love, mamachang

Maggie said...

Happy to hear the news. Will keep your family in my mind. Hope that the days to come will be better for you and your family

Jolene said...

Hi J,

Please email us at: ourfeistyprincess@gmail.com

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Hi all,

We've read all your comments and really appreciate it. =) Thanx for all your support.

 
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