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This weblog is specially dedicated to my very good friend, Cynthia and her daughter Charmaine, who is my god daughter.
Our feisty princess Charmaine has been diagnosed with neuroblastoma. She is currently in the 4th stage and fighting hard. We are greatly saddened that such a sweet and cheerful little girl has to undergo so much pain and suffering at such a young age.
I'm using this blog as a platform for anyone who wishes to share your stories and experience of having somebody close to you suffering from cancer. Please share your personal experience with neuroblastoma if possible. I would also appreciate if you could leave comments of encouragement for Cynthia and Charmaine. Do sign off with your name or a pseudonym for us to remember you by. =)
To know more about Charmaine and family, please go to http://ourfeistyprincess.com/
In order for us to help Charmaine fight this cancer battle, we require our friends and people who know us to help raise funds for the substantial medical expenses and the expensive treatments.
We would also appreciate if you wish to make alternative contribution arrangements.
If you are keen in donating or helping Cynthia and her family in any way, you may:
- Contact the feisty team at ourfeistyprincess@gmail.com.
- Click here for more information on direct funds donation.
At the very most if you are unable to contribute at this point of time, please take a little time to click on the nuffnang ads above. All proceeds would go into Charmaine's funds.
If you are new to this site, kindly click here to gain a better understanding of the whole situation before proceeding.
Thank you very much.
With warmest regards,
Jolene
Edited to add on 26 June 2009:
Doubling Charmaine's chances of survival
There is an alternative form of treatment for neuroblastoma offered in the US which could double Charmaine's chances of survival. The drug used in the treatment is known as 3F8, which is produced by the white blood cells of mice.
These antibodies are given intravenously to a patient and will circulate in the bloodstream till they attach to a neuroblastoma cell. The patient's own immune system will then attack and kill the neuroblastoma cell.
This treatment has been used in more than 500 patients since 1987.
Source: Memorial Sloan-Kettering Cancer Centre website
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8 comments:
Hello Jolene, U have my respect for what you have done for charmaine. It must have been tough on you, charmaine and her family. Its really heartwarming to see donations pouring in for brave charmaine. I really hope she will be able to get to the states for treatment soon. May God bless this beautiful angel~!
Hi..my nephew 5years old is also suffering from his is also stage4..
I do not know why is tis treatment so expensive, drugs company are making huge moni!!
I hope parents do not be so sturborn like my brother. There are infact lots of remendies that are comg from plants that can cure cancers. Please do the correct research on internet.
Please remember drugs do kill but herbs will not kill.
I did some search using ayurvedic for treating neuroblastoma, you can refer to the link below: It helps to reduce the side effect of the chemotherapy, therefore helps improving the therapeutic response and overall prognosis in neuroblastoma. Hope it helps!
http://www.zimbio.com/Cancer/articles/449/Neuroblastoma+Ayurvedic+Herbal+Treatment
Hi Cynthia. Last year we were helping this little girl from China, Xin Xin, who was diagnosed when she is staying with her parents in Singapore. You can read more about her and her fight against Neuroblastoma Stage 4 in http://prayforshuqin.blogspot.com/
Hi Cynthia and you team of angels, if you're feeling down, I hope to cheer you up with this...
http://www.liamjameskane.com/Hope.aspx
Don't give up. You're not fighting this battle alone, we're all behind you.
Best wishes,
Dennis
Hy feisty-team
How was the appointment with the doc today?
Take care
Claudio
Charlene:
finally cleared all the emails!! Phew!!
Everyone's dearest is now in her 5th chemo. Please do not visit her if you are unwell. This round of chemo's drug affect quite badly on her as she used the same drug as one of the previous rounds. So we are hoping she can get more rest now, before it hits her.
Dr Aung has suggested to send her to US asap, so we are looking at end July. with the fundings that come along, most likely MSKCC will accept her =D
There are alot of people emailing abt why MSKCC, why no HK etc.. they are in the blog already.
For NB, you do not stop at 1 treatment eg. 3F8. We were advised that if we can, give her an array of treatments. Cruel it may soundbecause each treatment means more needles poke, andmore poison to her, it is the only way to increase her chance.
thanks to all who walked all the way here with us.
HiFeisty Team,
I know many people are harping on the whys and whats of the planned treatments for Charmaine. I hope these people understand that there will never be a surefire-best treatment for cancer. Whatever adds to the chances of success is worth a try. So mummy Cynthia, I know ever so often you will be plagued with doubts about whether what you are putting Charmaine through to fight this is the right thing to do. All I can say is, go with your mummy's instinct when making these decisions based on the docs' advice. We are all in this with you..and walking every step with you. We are all praying for little Charmaine.
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